Hannah Lee


Hannah Lee is a high school student passionate about advocating for communities affected by galactosemia and other rare genetic disorders. Her journey began when she discovered the daily challenges faced by individuals living with rare diseases, inspiring her to take action. As co-founder she raises awareness through social media campaigns and creative initiatives like handmade candle sales, which have funded critical research. Hannah hopes her efforts will drive meaningful advancements in rare disease research and help build a healthier, more equitable future for affected families worldwide.